Organizations Offering Support and Assistance
American Dietetic Association (ADA)
The American Dietetic Association is the premier source for trustworthy, science-based food and nutrition information. As the world’s largest organization of food and nutrition professionals, ADA is committed to improving the nation’s health and advancing the profession of dietetics through research, education and advocacy.
American Transplant Foundation
The mission of the American Transplant Foundation is to save lives by reducing the growing list of women, men, and children who are waiting for a transplant. They do this by maximizing living organ donation, which is the most effective way to fulfill our mission.
A service of the National Council on Aging, this government run site is specifically for seniors and disabled individuals with limited income and resources. No identifying information is required, simply input data about your ability to work, age, financial situation and location, and the website will list potential benefit programs ranging from heating and energy assistance to prescription savings programs and income supplements.
Children’s Organ Transplant Association (COTA)
COTA helps children and young adults who need a life saving transplant by offering fundraising assistance and family support. Helps all Cystic Fibrosis patients regardless of age.
Chronic Disease Fund
Chronic Disease Fund exists solely to improve the health and quality of life of patients with chronic disease, cancer or other life altering conditions.
Good Life Resources, Inc.
A specialty pharmacy service that provides simple, cost-effective help for people living with chronic health conditions and easy access to long-term maintenance medications.
The HealthWell Foundation reduces financial barriers to care for underinsured patients with chronic or life-threatening diseases.
They provide financial assistance to eligible individuals to cover coinsurance, copayments, health care premiums and deductibles for certain medications and therapies.
National Foundation for Transplants (NFT)
This organization works to increase donor awareness and offers support to individuals waiting for transplant. Additionally, they assist patients in all 50 states with fundraising campaigns to assist with their lifelong transplant expenses.
National Transplant Assistance Fund (NTAF)
A leader in fundraising assistance and support for transplant and catastrophic injury, NTAF helps transplant patients raise money for expenses not covered by insurance. They offer a one-time assistance grant of $1,000 after the patient and family have raised $10,000.
NeedyMeds is a nonprofit that helps qualifying patients that cannot afford medicine of health care costs connect with medication assistance.
Partnership for Prescription Assistance
The Partnership for Prescription Assistance helps qualifying patients who lack prescription coverage to get the medicines they need. This site offers a point of access to more than 475 public and private patient assistance programs.
Patient Access Network Foundation (PAN)
The Patient Access Network (PAN) Foundation is an independent 501(c)(3) organization dedicated to providing help and hope to people with chronic or life-threatening illnesses for whom cost limits access to breakthrough medical treatments.
Second Wind Transplant Association, Inc.
This lung transplant only website includes message boards, information, resources, support and more for patients and families considering transplant surgery or individuals that have already completed the process.
SRTR – Scientific Registry of Transplant Recipients
One of the most highly respected and referenced registries in any field of medicine, SRTR provides reports and data on solid organ transplantation.
This site provides information about the transplant process, resources covering drugs and side effects, and daily discussions about living life as a transplant patient. The site also includes members’ photos and life stories covering experiences of both transplant recipients and donors.
Transplant Recipients International Organization, Inc. (TRIO)
This organization offers information about transplants to patients, family members and healthcare professionals and links pre-transplant candidates to others who have had or are also waiting for organ transplants. It also offers information about legislation that affects transplants and ways to get involved.
United Network for Organ Sharing (UNOS)
The UNOS site provides statistics on wait lists, surgery, transplant programs, and patients. It also includes links to many articles and websites related to transplantation – facts and myths and several patient tools, including how to calculate LAS score.