The UF Health Interdisciplinary Concussion Clinic Databank

We are asking permission from you to store some of the information from history, physical examination, and diagnostic evaluation routinely collected during your clinical evaluation at The UF Health Interdisciplinary Concussion Clinic in order to use it for future research.

This data will be used in future studies to validate current and future concussion management tools and strategies and gain further insight into concussion diagnosis and management. This information may also be used to determine whether you would qualify for participation in any future studies. If so, you might be invited to participate in a study in the future.

Procedures

If you agree, the following information will be collected and stored indefinitely as part of your routine clinical care at The UF Health Interdisciplinary Concussion Clinic and stored in the medical information bank:

• Name (Note that if you agreed to be contacted for future studies, your name and contact information will be retained in the database, but will not be shared with other investigators unless these investigators have requested contact information for future projects that have gained Institutional Review Board approval)
• Records of physical exams
• Demographics (e.g., date of birth, gender, sex, ethnicity)
• Diagnoses
• Medical and treatment results (e.g., laboratory, CT, MRI)
• Complete medication list
• Neuropsychological clinic notes and assessments
• Cognitive and psychiatric test results
• Information from voice, video, digital, or image recordings related to diagnoses and/or treatments of current and past traumatic brain injuries
• Family information (e.g., income, occupation, residence, medical history)
• Academic History
• Diaries, questionnaires, standard of care assessments and scales
• Contact information (e.g., phone number, email address, mailing address)
• Future research data from IRB-approved research projects that have declared this inclusion in their informed consent forms may be added in the databank

Eligibility

• History of traumatic brain injury or exposure to sub-concussive impacts.

For additional study details and eligibility criteria, please contact Julie Segura: 

• Julie.Segura@neurology.ufl.edu
• (352) 273-5566