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Enroll-HD (Huntington’s disease)

Purpose

Enroll-HD is a worldwide research study of Huntington’s disease (HD).

The purpose of this research study is to collect clinical information about you and your health. We will also collect biological samples, such as blood and DNA (the genetic material in your blood). Researchers will use this information and samples to learn more about Huntington’s disease and to try to find new treatments for the disease.

This study is for individuals who have been affected by HD or from an HD family.

Procedures

This is a longitudinal study. That means we will ask you to undergo the research procedures about once a year for as long as you are willing to participate.

If you choose to participate in Enroll-HD we will collect some of the following information:

  • Conduct a clinical evaluation of your current medical status and wellbeing
  • Collect a sample of your blood to study your DNA
  • Store the data and biological materials we collect from you in a secure place and make them available for future research.

Additional information such as family history and other samples may be gathered, for more details about study procedures please contact Randy Foli:

Eligibility

  • Individuals diagnosed with Huntington’s disease (HD) OR
  • Individuals from a Huntington’s disease (HD) family

For eligibility questions please contact Randy Foli:

Age

18 and under
18 to 65
65 and over

Gender

Male
Female

Monetary compensation

Yes

Can be done from home

No

Keywords

Huntington disease, Huntington's disease

Principal Investigator

Nikolaus McFarland, MD, PhD

Contact Information

randy.foli@neurology.ufl.edu

(352) 733-2433

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Studies listed on this site have been approved by a UF Institutional Review Board (IRB), which works to ensure the welfare and rights of research participants as required by federal regulations. Study listings are provided by the UF Clinical and Translational Science Institute in collaboration with UF research teams and the UF IRBs.

Be an Informed Participant

Before deciding to participate in a research study, take time to learn about clinical research, how it's conducted and your rights as a research participant. Following are some helpful resources from independent sources. Always remember that a clinical research study is research, not treatment.

Know Who to Contact

  • Eligibility: For questions about a specific study and who is eligible to participate, call or email the contact person listed for that study.
  • Your Rights: For questions about your rights as a research participant, contact the UF Institutional Review Boards at 352-273-9600.
  • Feedback: For general questions or feedback about study listings, email the UF Clinical and Translational Science Institute at UFStudies@health.ufl.edu.

Other Resources

  • HealthStreet: Health-focused services, classes and events, and opportunities to participate in research.
  • ResearchMatch.org: Join a national registry of volunteers willing to be contacted about research studies.

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